Patient Groups

Paula Polite of the Sarcoidosis Research Institute, Memphis, USA, stresses the importance of sarcoidosis patients groups. For several years there has been cooperation between the sarcoidosis patient societies within Europe, as well as between Europe, the USA and Japan. To promote the interest of sarcoidosis patients, delegates of various patient societies have become a member of WASOG and participate in international congresses (Polite PY. Eur Respir Mon 2005;32: 337-39).
 

Austria
Österreichischerr Sarkoidose Vereinigung (OSV)
e-mail:  sarkoidose@gmx.at 
website: none available yet

Belgium
Vereniging voor sarcoïdosepatiënten (BVS)
e-mail:  hilde.santermans@uz.kuleuven.ac.be
website: www.sarcoidose.be

Europe
European Association of Patients Organizations of Sarcoidosis and other Granulomatous Disorders (EPOS )
e-mail: info@sarcoidosis.biz
website: http://www.sarcoidosis.biz

France
Réseau International de Soutien des Malades de la Sarcoïdose Réseau (RISMS)
e-mail: address : risms@wanadoo.fr
website : http://www.sarcoidose-infos.com 

Germany
Deutsche Sarkoidose-Vereinigung (DSV)
The DSV is an association of patients and their relatives, founded in 1987 and has at the moment about 3400 members.
e-mail:  sarkoidose@aol.com 
website: www.sarkoidose.de 

Japan
Japanese Patient Association (JPA)
e-mail:  info@kyo-sar.com 
website: www.kyo-sar.com 

The Netherlands
Sarcoïdose Belangenvereniging Nederland (SBN)
This association was founded in 1978 and has currently about 2300 members and more than 100 supporters.
e-mail:  info@sarcoidose.nl
website: www.sarcoidose.nl 

Belangenvereniging Longfibrosepatiënten Nederland
The 'Dutch Pulmonary Fibrosis Society' was founded in 2000. The goals are among others provide information about the disease, support research and educational projects.
e-mail:  longfibrosevereniging@home.nl 
website: http://www.longfibrose.nl

Switzerland
Schweizerische Sarkoidose-Vereinigung (SSARV)
e-mail:  info@sarkoidose.ch 
website: www.sarkoidose.ch 

United Kingdom
Sarcoidosis and Interstitial Lung Association (SILA)
e-mail: info@sila.org.uk
website: www.sila.org.uk

United States of Amerika
Sarcoid Networking Association (SNA)
e-mail:  sarcoidinformation@sarcoidosisnetwork.org
website: www.sarcoidosisnetwork.org 

Sarcoidosis Network Foundation
website: http://www.sarcoid-network.org

Sarcoidosis Online Sites
website: http://www.sarcoidosisonlinesites.com