For Patients


Living with sarcoidosis or interstitial lung disease (ILD) can be challenging, both physically and emotionally. Connecting with others who share similar experiences can provide valuable support, practical advice, and a sense of community. Patient organizations play a crucial role in offering reliable information, advocacy, and opportunities to connect—both locally and globally. On this page, you will find an overview of patient associations worldwide, helping you find support, share experiences, and stay informed.

WASOG works closely with several patient societies and patient representatives are always included in both research collaborations and education.

Recommended websites

Questionnaires

Fatigue Assessment Scale (FAS)

Small fibre neuropathy screening list (SFNSL)